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ABSTRACT

One of the most controversial questions that arose during negotiations on the United Nations Convention on the Rights of Persons (CRPD) concerned whether or not health interventions could ever be performed without the recipient’s consent. This is particularly important in relation to persons with severe mental impairments whose consent to or refusal of treatment may be rendered irrelevant under mental health or guardianship legislation. In its General Comment No 1, the United Nations CRPD Committee has stated that States Parties have an obligation to require mental health practitioners to obtain the free and informed consent of persons with disabilities prior to any treatment. This article analyses recent case law in Australia that indicates that while there has been some attention paid to human rights breaches in relation to the detention of persons with mental impairments for treatment purposes, there is a large gap between what the CRPD Committee requires and the ‘weak’ protection that continues to be afforded in relation to informed consent to medical treatment.

Introduction

The United Nations Convention on the Rights of Persons with Disabilities (CRPD) has been hailed as signalling a ‘new era’ in terms of limitations on, if not the abolition of, compulsory detention and treatment for persons with mental impairments1 (Minkowitz 2007, 427). Australia ratified the CRPD on 17 July 2008, and the CRPD has been influential in framing mental health policy discussions about reducing coercive practices in mental health facilities (National Mental Health Commission 2015, 17) as well as in law reform endeavours (Australian Law Reform Commission 2014a, 2014b).

This paper examines the right to informed consent in relation to medical treatment and what the CRPD requires in this regard. It explores how human rights frameworks apply to persons with mental impairments and the right to informed consent for treatment and argues that the limited Australian case law on human rights and the treatment of those with severe mental impairments indicates that there is only ‘weak’ protection afforded in relation to informed consent. This appears to be based on the presumption that those with severe mental impairments are not ‘competent in law’ (Re T 1993 at 761[2]) and thus need not be warned of ‘a material risk inherent in the proposed treatment’ (Rogers v Whitaker 1992, at 490). Recent interpretations of the CRPD, however, challenge this presumption and place the obligation on mental health practitioners to obtain the free and informed consent of persons with disabilities prior to any treatment.

This paper is divided into three sections. First, it outlines relevant international law relating to the right to health and informed consent to treatment, with particular attention paid to the debates about the CRPD’s interpretation in relation to persons with mental impairments. Secondly, it examines Australia’s ratification of the CRPD with its Declaration that it allows for substituted decision-making and the general human rights framework for those with mental impairments. Thirdly, it turns to recent case law in the Australian Capital Territory and Victoria, the only Australian jurisdictions to have enacted human rights statutes, which indicates how the courts will apply a human rights framework to those with mental impairments. Finally, it is argued that while there has been some attention paid to human rights breaches in relation to processes surrounding detention, informed consent in itself has not been viewed as a pre-requisite for the treatment of persons with mental impairments.

Relevant international law2

The right to health has been recognised and developed within various human rights treaties and includes the right to access different elements of healthcare and related services. The right to health also provides a framework for the way in which informed consent to treatment is seen as central to the provision of good quality healthcare.

Jennifer Sellin has stated:

the international right to health does not entail a right for individuals to be healthy, but it encompasses a number of freedoms and entitlements to enable individuals to attain the highest standard of health possible (Sellin 2014, 82).

Article 12 of the International Covenant on Economic, Social and Cultural Rights sets out the general right to health. However, various human rights conventions, including the Convention on the Elimination of All Forms of Discrimination against Women, the Convention on the Elimination of All Forms of Racial Discrimination, and the Convention on the Rights of the Child, contain health-related rights, and seek to tailor these to the particular needs of the covered groups. In the disability context, the CRPD seeks to do the same.

The CRPD addresses health in Article 25, which provides: ‘States Parties recognize that persons with disabilities have the right to the enjoyment of the highest attainable standard of health without discrimination on the basis of disability.’ Para (d) of the Article further specifies that State Parties shall: ‘[r]equire health professionals to provide care of the same quality to persons with disabilities as to others, including on the basis of free and informed consent . . . ’ [Emphasis added].

As will be explored in the next section, this requirement is far from being realised both in the common law and in legislation in relation to the right to health for those with severe mental impairments.

Intersecting with Article 25 of the CRPD is Article 12, which deals with equal recognition before the law. It requires States Parties to ‘recognize that persons with disabilities enjoy legal capacity on an equal basis with others in all aspects of life’ [Article 12(2)] and to ‘take appropriate measures to provide access by persons with disabilities to the support they may require in exercising their legal capacity’ [Article 12(3)].

Articles 12 and 25 are supplemented by Article 15, which provides that ‘[n]o one shall be subjected to torture or to cruel, inhuman or degrading treatment or punishment’, and Article 17, which provides that ‘[e]very person with disabilities has a right to respect for his or her physical and mental integrity on an equal basis with others’. An individual’s integrity is violated when he or she is subject to enforced treatment.

Anna Bruce notes that the issue of whether health interventions could ever be performed without the recipient’s consent was one of the most controversial issues during the negotiations of the CRPD (Bruce 2014, 160). Some guidance on this issue has now been provided by General Comment No 1 of the CRPD Committee on Article 12. While the focus in the General Comment is on equality before the law, the General Comment also addresses the issue of informed consent under Article 25:

The right to enjoyment of the highest attainable standard of health (art. 25) includes the right to health care on the basis of free and informed consent. States parties have an obligation to require all health and medical professionals (including psychiatric professionals) to obtain the free and informed consent of persons with disabilities prior to any treatment. In conjunction with the right to legal capacity on an equal basis with others, States parties have an obligation not to permit substitute decision-makers to provide consent on behalf of persons with disabilities. All health and medical personnel should ensure appropriate consultation that directly engages the person with disabilities. They should also ensure, to the best of their ability, that assistants or support persons do not substitute or have undue influence over the decisions of persons with disabilities. (para 41)

General Comment No 1 certainly appears to suggest that all individuals, irrespective of their ability or disability, must give individual consent for medical treatment, and, whilst supported decision-making is permissible for those individuals who need it, substituted decision-making will always be regarded as incompatible with the Convention. This is reflected in the argument of Peter Bartlett, who has noted ‘the CRPD appears to proceed on the basis that disability cannot be used as a factor in determining whether compulsion may be imposed’ (Bartlett 2012, 753).

Article 12(2) of the CRPD recognises that ‘persons with disabilities enjoy legal capacity on an equal basis with others in all aspects of life’, and Article 12(3) refers to exercising legal capacity. In the past, legal capacity has generally been conflated with mental capacity, which the CRPD Committee defines as ‘the decision-making skills of a person’. The Committee states:

the concepts of mental and legal capacity have been conflated so that where an individual is thought to have impaired decision-making skills, often because of a cognitive or psychosocial disability, her legal capacity to make a particular decision is removed . . . an individual’s disability and or decision-making skills are accepted as a legitimate basis for denying her legal capacity and lowering her status before the law. Article 12 does not permit this discriminatory denial of legal capacity. . . . (para 15)

Laws that enable involuntary treatment on the basis of a loss of decision-making capacity on this view are therefore discriminatory. Mental capacity should no longer be intrinsically linked to legal capacity (McSherry 2014). In Genevra Richardson’s words ‘in its purest form there is no point beyond which legal capacity is lost. There is no binary divide’ (Richardson 2013, 92). On this basis, some authors have argued that there can be no exceptions to legal capacity and thus no justifications for substituted decision-making regimes. In comparison, others have argued that some form of substituted decision-making based on assessments of the ability to make decisions is necessary and permissible under Article 12. Rosemary Kayess and Phillip French, for example, state that the failure to acknowledge real differences in abilities in the CRPD leads to superficial equality, and they argue this is most evident in Article 12, ‘which border[s] on a complete denial of the instrumental limitations associated with cognitive impairments’ (Kayess and French 2008, 7).

Joseph Dute, in a recent editorial in the European Journal of Health Law, expands on this criticism in the context of General Comment No 1 and substitute decision-making with regard to medical treatment. He notes the interpretation of the CRPD Committee that substituted decision-making is not compatible with the Convention, but criticises this as ‘a step too far’, arguing that the Committee ‘has lost sight of reality’ (Dute 2015, 318). He argues that to abolish substituted decision-making in its entirety in the context of medical treatment would be ‘unworkable’, and the Committee has failed to recognise that some individuals are simply unable to take a decision regarding their own medical treatment, even with extensive support. He also argues that such an approach would undermine the possibility to ‘protect people who are in need of care’, and substituted decision-making can facilitate suitable medical treatment and care (Dute 2015, 318).

In relation to those with mental impairments, Melvyn Colin Freeman and seven colleagues have published a ‘personal view’ of the General Comment in the Lancet Psychiatry. They argue that the General Comment

threatens to undermine critical rights for persons with mental disabilities, including the enjoyment of the highest attainable standard of health, access to justice, the right to liberty, and the right to life. (Freeman et al. 2015, 844)

In addition, they state that ‘[s]tigma and discrimination might also increase’ (Freeman et al. 2015, 844). Whilst recognising that legal capacity should always be assumed, and safeguards should be provided, they feel, like Dute, that informed consent for medical treatment is not always possible, and to deny individuals medical treatment on the basis that they are unable to consent would violate a number of other human rights protected in the Convention. Freeman and his colleagues put the problems with the General Comment down to the ‘absence of clinical experts on the Committee’, the failure to consult clinicians when drafting the Comment, and the failure of the Committee to take note of users of psychiatric healthcare who support substitute decision-making in the context of medical treatment in some circumstances (Freeman et al. 2015, 848). Unlike Dute, Freeman and colleagues acknowledge the wide involvement of service users (including persons with mental impairments) in drafting the CRPD and the General Comment, and the support many users expressed for the abolition of involuntary treatment and detention, but argue that service users and others expressing a contrary view were not adequately heard.

Other scholars have been less critical of the CRPD and General Comment No 1 and, in some cases, praised them. Jill Stavert, writing in the Scottish context, argues that the General Comment and Article 12 of the CRPD can provide the stimulus to review existing legal capacity regimes and provisions concerning consent for medical treatment by persons with mental impairments, with a view to providing greater protection of human rights and respect for individual wishes (Stavert 2015, 301). Lucy Series similarly praises the CRPD for creating ‘an opening for discussions’ and ‘new tools for approaching these discussions through its powerful focus on equality, autonomy and the external determinants of disablement, vulnerability and risk’ (Series 2015, 89). She argues that the most important contribution of the CRPD is to require that persons with disabilities are actively involved in deliberations on laws and policies that concern them, ‘rather than having their decisions being delegated to the very “experts” they so often empower’ (Series 2015, 89).

Eilionoir Flynn and Anna Arstein-Kerslake, writing about the broader issue of legal recognition of ‘personhood’ and Article 12 of the CRPD, argue that personhood should be separated from cognition. They argue that Article 12 establishes that legal capacity is universal, and always remains with the individual (Flynn and Arstein-Kerslake 2014). This imposes an obligation on States Parties to eliminate substituted decision-making regimes in their entirety, recognise the diversity of ability to make decisions, and provide a continuum of support to ensure legal capacity.

These various contributions reflect the ongoing nature of the debate on the need for informed consent and the role (if any) for substitute decision-making amongst scholars in the field (McSherry and Wilson 2015). The next section explores the way in which such debates may influence law reform endeavours in Australia.

Australian law

The CRPD and human rights frameworks in Australia

In this section, it is argued that there are certain legal barriers restricting the influence the CRPD and human rights discourse more generally may have on guiding statutory interpretation in Australia as well as in relation to guiding legislative reform. This is because, first, the CRPD has not been incorporated into domestic law via legislation and, secondly, because Australia’s declarative interpretation of the CRPD indicates that governments will and are taking a conservative approach to law reform in relation to the rights of persons with mental impairments.

Under Article 26 of the Vienna Convention on the Law of Treaties, a convention is ‘binding upon the parties to it and must be performed by them in good faith’. Article 27 of the Vienna Convention provides that ‘a party may not invoke the provisions of its internal law as justification for its failure to perform a treaty . . . ’. However, while the Disability and Other Human Rights Legislation Amendment Act 2009 (Cth) amended certain statutes to reflect some of the Articles of the CRPD, Australia has not incorporated the CRPD fully into domestic law and appears unlikely to do so.

The Asia-Pacific region does not have a human rights treaty or a regional mechanism for the protection of human rights (McBeth, Nolan, and Rice 2011). While the Australian Capital Territory and Victoria have enacted the Human Rights Act 2004 (ACT) and the Charter of Human Rights and Responsibilities Act 2006 (Vic), respectively, these are statutes that can be amended by Parliament. The absence of a national Bill of Rights means that the interaction between international human rights law and Australian domestic law is often uncertain. While Australia has ratified many international human rights treaties, including the CRPD, as affirmed by its High Court in Kioa v West (1985)these do not form part of Australian law unless they are specifically incorporated by the country’s national Parliament into domestic law.

Many international treaty obligations remain unincorporated into domestic law, including the rights set out in the International Covenant on Economic, Social and Cultural Rights and some of the rights in the International Covenant on Civil and Political Rights. While international law can contribute to the interpretation of domestic law where there are gaps or uncertainty and guide the development of legislation, different interpretations of international principles at the domestic level remain a ‘persistent feature of the complex interface between international and domestic law’ (Weller 2008, 87). In addition, courts cannot rely on provisions of ratified conventions unless they are dealing with a statute that has incorporated those provisions into Australian law. Thus, in relation to the CRPD, which has not been fully incorporated into domestic law, courts can develop the common law to reflect CRPD provisions, but are not obliged to draw on the CRPD in interpreting statute law.

In the Australian context, consideration must also be given to the Declaration that Australia made when ratifying the CRPD. The Declaration is to the effect that Australia understands the CRPD as allowing for ‘fully supported or substituted decision-making arrangements’ and ‘allows for compulsory assistance or treatment of persons, including measures taken for the treatment of mental disability’.3

The Australian Law Reform Commission (2014a, 9), as part of its Inquiry into equality, capacity, and disability in Commonwealth laws, initially recommended in its Discussion paper that the Australian Government review this Declaration ‘in order to withdraw’ its interpretations of the relevant Articles. However, in its final report, the Commission did not repeat this recommendation, but reframed the issue in terms of ‘how to advance, to the . . . [maximum] . . . extent possible, supported decision-making in a federal system’ (Australian Law Reform Commission 2014b, 58). It recommended that there be domestic law reform ‘regardless of whether the Declaration itself remains’ (Australian Law Reform Commission 2014b, 57).

The Commission (Australian Law Reform Commission 2014b, 11) has recommended the adoption of ‘National Decision-Making Principles’ as a framework for amending laws relating to persons with disabilities including mental health and guardianship laws. The Principles emphasise that persons with disabilities should be given support to make their own decisions, but there is also provision for the appointment of a ‘representative decision-maker’ as a ‘last resort’ (Australian Law Reform Commission 2014b, 11). There is a proviso that ‘a representative may override a person’s will and preferences’ where necessary to prevent harm (Australian Law Reform Commission 2014b, 13).

This signals that the purist interpretation of the CRPD discussed in the Relevant international law in this article is unlikely to hold sway in Australia in that the Australian Law Reform Commission still envisages room for legally appointed or recognised representatives to make decisions against a person’s will and preferences in certain circumstances. The next section turns to what the approaches to interpreting legal capacity under the CRPD mean in relation to informed consent.

Informed consent: common law and statute

In Australia, the law relating to informed consent to treatment may be found in common law as well as legislation. The common law follows the English approach whereby an adult ‘is presumed to have the capacity to consent to or to refuse medical treatment unless and until that presumption is rebutted’ (Butler-Sloss LJ in Re MB 1997, at 553). In Marion’s case (1992), which concerned an application for the sterilisation of a child with an intellectual disability, the High Court referred to the circumstances of ‘incapacity’ as differing greatly (at 234) and cautioned against ‘misconceptions often involving an underestimation of a person’s ability’ (at 239).

In Hunter and New England Area Health Service v A, Justice McDougall of the New South Wales Supreme Court summarised the law relating to consent to treatment and cited with approval Butler-Sloss LJ’s statement in the English case Adult Refusal of Medical Treatment (Re T) (1993, at 116) that

[a] man or woman of full age and sound understanding may choose to reject medical advice and medical or surgical treatment either partially or in its entirety. A decision to refuse medical treatment by a patient capable of making the decision does not have to be sensible, rational or well considered. (McDougall J in Hunter and New England Area Health Service v A 2009, at 761[10])

Justice McDougall subsequently went on to say that

[a]n apparent consent (or refusal of consent) may be ineffective for a number of reasons . . . the individual concerned may not have been competent in law to give or refuse that consent. (at 761[2])

Australian law on disclosure of information about treatment predominantly stems from the High Court decision in Rogers v Whitaker. In that case, the Court stated that the term ‘informed consent’ ‘is apt to mislead as it suggests a test of the validity of a patient’s consent’ (Mason CJ, Brennan, Dawson, Toohey, and McHugh JJ in Rogers v Whitaker 1992, at 490). Rather, it imposed a duty of care on medical practitioners to ‘warn a patient of a material risk inherent in the proposed treatment’ (at 490). Chief Justice Martin in Brightwater Care Group (Inc) v Rossiter (2009, para [30]) perhaps best summarised this Australian notion of ‘informed consent’ as ‘a legal duty to inform patients of all aspects and risks associated with any medical procedure before seeking their consent to that procedure’. Chief Justice Martin stated that there was a similar obligation to provide patients with ‘full information as to the consequences of any decision to discontinue treatment’ (Brightwater Care Group (Inc) v Rossiter 2009, para [30]).

The High Court in Rogers v Whitaker (1992) cited with approval Chief Justice King’s statement in F v R (1983, at 193) that ‘the paramount consideration [is] that a person is entitled to make his [or her] own decisions about his [or her] life’ (Mason CJ, Brennan, Dawson, Toohey, and McHugh JJ in Rogers v Whitaker 1992, at 487). However, the Court went on to state in relation to the duty to disclose relevant information ‘[t]hat this duty is subject to the therapeutic privilege’ (at 487), a term used to allow clinicians to withhold information on the basis that disclosure may be harmful to the patient.

Justice Gaudron agreed with the reasons set out in the joint judgment of the rest of the High Court, but added that the ‘duty to provide information and advice . . . takes its precise content . . . from the needs, concerns and circumstances of the patient’ (Rogers v Whitaker 1992, at 493). Her one point of disagreement with the joint judgment was that she could

see no basis for any exception or ‘therapeutic privilege’ which is not based in medical emergency or in consideration of the patient’s ability to receive, understand or properly evaluate the significance of the information that would ordinarily be required with respect to his or her condition or the treatment proposed. (Gaudron J in Rogers v Whitaker 1992 at 494)

Justice Gaudron here indicates that a ‘patient’s ability to receive, understand or properly evaluate the significance of the information’ may provide an exception to the need for informed consent. While not explicitly stated as an exception, Mason CJ, Brennan, Dawson, Toohey, and McHugh JJ also refer to the skill of medical practitioners ‘in communicating the relevant information to the patient in terms that are reasonably adequate for that purpose having regard to the patient’s apprehended capacity to understand that information’ (Rogers v Whitaker 1992, at 487, emphasis added). These statements reflect the notion of ‘mental capacity’ that the CRPD Committee is at pains to separate from legal capacity. Medical practitioners, thus, at common law, need not provide information about treatment options and associated risks to those they consider unable to understand such information. The rights, will, and preferences of persons with mental impairments may not be respected on this basis.

In relation to legislation, the six Australian states and two territories each have specific mental health laws that override the common law of informed consent and enable involuntary detention and treatment of those with mental impairments as well as substituted decision-making laws in the form of guardianship statutes. In general, the provisions in Australian mental health acts enabling involuntary treatment require there to be some form of ‘mental illness’, which is largely based on the existence of certain symptoms (for details see McSherry and Wilson 2015). There is also a ‘need for treatment’ criterion such that the treatment must be linked to the mental illness in addition to a criterion relating to risk, dangerousness, or harm to self or others [Mental Health Act 2015 (ACT) s 58; Mental Health Act 2007 (NSW) ss 13–15; Mental Health and Related Services Act (NT) s 14; Mental Health Act 2016 (Qld) ss 10–12; Mental Health Act 2009 (SA) ss 21, 25, 29; Mental Health Act 2013 (Tas) s 40; Mental Health Act 2014 (Vic) s 5; Mental Health Act 2014 (WA) s 25]. The risk of harm criterion has been criticised on a number of grounds including on the basis that it is discriminatory to allow the detention of persons with mental impairments for treatment when others, for example those with a history of violence under the influence of alcohol and other drugs, cannot be so detained (Callaghan and Ryan 2012, 2014; Hewitt 2008; Large et al. 2008; McSherry 2014, 54–56; Ryan, Callaghan, and Large 2012; Szmukler and Rose 2013).

Some of the newly reformed Acts include a criterion that ‘the person does not have decision-making capacity’, thus creating a ‘hybrid’ risk and capacity civil commitment model [Mental Health Act 2015 (ACT) s 58(2)(b); Mental Health Act 2013 (Tas) s 40(2)(b); Mental Health Act 2016 (Qld) s 12(1)(b) Mental Health Act 2014 (WA) ss 25(1)(c) and 25(2)(c); see also Ryan, Callaghan, and Peisah 2015a]. Despite law reform endeavours in Australia being strongly influenced by the rights set out in the CRPD, as discussed in the 'Relevant international law' section of this paper, the CRPD Committee has signalled that such laws that enable involuntary treatment on the basis of a loss of decision-making capacity are discriminatory. Nevertheless, some Australian scholars (Callaghan and Ryan 2012, 2014; Ryan, Callaghan, and Peisah 2015a, 2015b) have argued that such capacity-based legislation is going in the right direction in terms of human rights compliance.

Only some of these mental health statutes refer to informed consent [Mental Health Act 2016 (Qld) Part 10, Div 2; Mental Health Act 2014 (Vic), ss 69–71; Mental Health Act 2014 (WA) Part 5, Div 2], and, when they do, they generally enable a substitute decision-maker to override an informed refusal of consent by the person being treated. For example, Section 70 of the Mental Health Act 2014 (Vic) requires informed consent to treatment to be sought prior to treatment being given. Section 71 then deals with the situation where a person ‘has the capacity to give informed consent, but does not give informed consent to the treatment proposed by the authorised psychiatrist’ [Mental Health Act 2014 (Vic), s 71(1)(a)(ii)]. It requires the authorised psychiatrist to consult with a range of stakeholders and make enquiries to try to understand why the person does not wish to consent to treatment (defined under Section 6 as ‘things . . . done to the person in the course of the exercise of professional skills . . . to remedy the mental illness; or . . . to alleviate the symptoms and reduce the ill effects of the mental illness’) and to consider a range of less restrictive treatment options, before deciding whether to give involuntary treatment or not. Section 71(3) enables the psychiatrist to override a person’s refusal to give informed consent by stating that

[t]he authorised psychiatrist may make a treatment decision for the patient if the authorised psychiatrist is satisfied that there is no less restrictive way for the patient to be treated other than the treatment proposed by the authorised psychiatrist.

This indicates that s 71 sets up a ‘process right’ or a right to participate in decision-making rather than a substantive right to refuse treatment.

In general, while the common law in Australia has set up a presumption of capacity to consent to or refuse treatment and imposes on practitioners a duty to warn individuals of any significant risks involved in their treatment, both the common law and mental health (and guardianship) legislation provide an exception to the requirements of informed consent to treatment for persons with severe mental impairments.

The human rights framework

Australia does not have a federal bill of rights, and there is no regional human rights convention to guide courts. In Minister for Immigration and Ethnic Affairs v Teoh (1995), Chief Justice Mason and Justice Deane of the High Court of Australia stated that:

The provisions of an international convention to which Australia is a party, especially one which declares universal fundamental rights, may be used by the courts as a legitimate guide in developing the common law. (at 288)

As is discussed below, the CRPD was used by Justice Vickery in this way to develop the common law relating to undue influence in Nicholson v Knaggs (2009). However, in Teoh (1995) Chief Justice Mason and Justice Deane went on to warn:

But courts should act in this fashion with due circumspection when the Parliament itself has not seen fit to incorporate the provisions of a convention into our domestic law. Judicial development of the common law must not be seen as a backdoor means of importing an unincorporated convention into Australian law. (at 288)

Some Australian statutes do attempt to legitimise the role of international human rights law in shaping domestic law and policy. For example, the Human Rights (Parliamentary Scrutiny) Act 2011 (Cth) requires at s 8(3) that all federal legislation be scrutinised for compatibility with international human rights standards.

In the state of Victoria, the Charter of Rights and Responsibilities (the Charter), which was enacted by the Charter of Rights and Responsibilities Act 2006 (2006), requires state and local government authorities to respect and promote the 20 human rights set out in it when they serve the community, but it does not provide any avenue for individual complaints. John Tobin has pointed out in this regard that ‘the absence of a right to take an action before the courts . . . undermine[s] the capacity to provide effective protection for human rights in Victoria’ (Tobin 2005, 40). An independent review of the Charter has recently been completed with a report tabled before the Victorian Parliament in September 2015 making 52 recommendations for consideration (Young 2015). At the time of writing, the government has yet to respond to any of these recommendations.

An interpretive obligation is placed on public authorities in Victoria under s 32(1) of the Charter, which provides: ‘[s]o far as it is possible to do so consistently with their purpose, all statutory provisions must be interpreted in a way that is compatible with human rights’. There is, however, a ‘reasonable limits’ provision, s 7(2), which provides that ‘[a] human right may be subject under law only to such reasonable limits as can be demonstrably justified in a free and democratic society’. One of the key recommendations for change to the Charter in the 2015 report is for s 32 to set out the steps for interpreting statutory provisions compatibly with human rights in order to ‘ensure clarity and accessibility’ (Young 2015, 148).

In the Australian Capital Territory (the ACT), the Human Rights Act 2004 is, like the Victorian Charter, based on the ‘dialogue’ or ‘weak-form’ model of human rights protection. This means that the ACT Supreme Court cannot rely on the Human Rights Act to ‘strike down’ or invalidate any statutory provision, nor can the Court rule that any government actions made under the statutory provision in question are unlawful. In both Victoria and the ACT, their respective Supreme Courts may only make a declaration of incompatibility and notify the relevant Attorney-General of this under the Charter or Act. The Attorney-General must provide a written response to such a declaration, and then it is up to the relevant Parliament to decide what action (if any) to take. A review of the Human Rights Act 2004 carried out in 2006 indicated that this statute had led to a greater oversight of the development of legislation, but that it had not led to a flood of litigation as was originally feared (Charlesworth and McKinnon 2006).

Finally, David Kinley and Christine Ernst have pointed out that both the Human Rights Act 2004 (ACT) and the Victorian Charter

define human rights by reference to a select list of rights, all of which are civil or political. This means that when Ministers attest that Bills are compatible with human rights, and when parliamentary committees scrutinise those attestations, they are conducting their assessments by reference to a limited group of rights that does not represent the full spectrum of international human rights law. (Kinley and Ernst 2012, 61)

Cases referring to the CRPD, the Victorian charter, and the Human Rights Act 2004 and persons with mental impairments

Because case law has not as yet directly addressed the law relating to informed consent to treatment for persons with severe mental impairments, this section provides an overview of the handful of cases that have discussed the Human Rights Act 2004 (ACT) and the Victorian Charter of Rights and Responsibilities where persons with mental impairments have been involved. The analysis indicates that while courts are willing to apply a human rights framework to protect the rights, will, and preferences of persons with mental impairments in certain circumstances, it appears unlikely that courts will impose a duty on medical practitioners to warn those subject to involuntary treatment of ‘a material risk inherent in the proposed treatment’ (Rogers v Whitaker 1992, at 490) on an equal basis with others.

In a case concerning the testamentary capacity of a woman who had been diagnosed with dementia prior to her death, Justice Vickery of the Supreme Court of Victoria interpreted Article 12 of the CRPD as placing an obligation on states to ‘ensure that appropriate and effective safeguards are in place which respect the rights, will and preferences of the person with disabilities’ (Vickery J in Nicholson v Knaggs 2009, at [69]). He only briefly mentioned the Victorian Charter (which does not refer to a right to freedom of testamentary disposition) as not detracting from ‘rights and freedoms under international law or the common law’ (at [22]).

Perhaps because this case was heard prior to the CRPD Committee’s interpretation of the meaning of legal capacity set out above, Justice Vickery assumed that proof of mental (testamentary) capacity was a pre-requisite to the exercise of legal capacity. He interpreted Article 12 as serving a protective function in supporting the common law concept of ‘undue influence’ in protecting persons with disabilities, ‘including the elderly who suffer from disabilities, [who] are uniquely vulnerable to the exercise of undue influence on the part of others’ (at [75]). Medical evidence concerning dementia was thus relied upon to assess the testator’s capacity when she made three different wills in 1985, 1999, and 2001. Justice Vickery went on to rely on the CRPD to develop the common law of ‘undue influence’ and held that it was more likely than not that the testator had been subject to undue influence from some of the beneficiaries of one of the contested wills when making that will.

In both Victoria and the ACT, involuntary treatment of those with mental impairments has been viewed as either not a breach or a permissible breach of the rights set out in the Charter and the Human Rights Act 2004 (ACT).

In ACT v JT (2009) Chief Justice Higgins of the ACT Supreme Court stated that ‘enforced medication of a mentally ill patient is not a breach of the Human Rights Act’ (at [39]), but did not elaborate on the reasons for this. In that case, he refused an application seeking a declaration that it was lawful for ‘JT’ to decline naso-gastric intubation because JT was engaging in dangerous fasting practices as a result of religious delusions.

Two years later in C v Chief Psychiatrist (2011), Chief Justice Higgins heard an appeal against a decision by the ACT Civil and Administrative Tribunal making a ‘psychiatric treatment order’ under the Mental Health (Treatment and Care) Act 1994 (ACT). The appellant argued that the order breached C’s right to protection from torture and cruel, inhuman, or degrading treatment (s 10), right to liberty (s 18), and right to a fair trial (s 21). In refusing the appeal, the Chief Justice stated:

It should be noted that s. 28 of the HR Act [sic] permits ‘reasonable limits’ to be placed upon human rights. It seems to me that the provisions of the MH(T & C) Act [sic] are consistent with those limits and the application by ACAT [sic] of those provisions seems to me to be within those limits. (Higgins CJ in C v Chief Psychiatrist 2011, at [60])

Again, Chief Justice Higgins did not elaborate on this point.

Similarly, in a series of cases heard in Victoria, involuntary treatment under the Mental Health Act 1986 (Vic) – now replaced by the Mental Health Act 2014 (Vic) – was viewed as being a reasonable breach of the rights set out in the Victorian Charter of Rights and Responsibilities. In Re Appeal of 09-08 (2009) the Mental Health Review Board held that ‘AA’, a 28-year-old man who had been diagnosed with paranoid schizophrenia, could be treated involuntarily not only with antipsychotic medication, but also with Depo Provera, a female sex hormone used to reduce sexual urges. There was evidence that Depo Provera could affect bone density and that AA’s lumbar spine was abnormally low in calcium, consistent with a diagnosis of osteoporosis. AA’s counsel argued that the use of this drug amounted to cruel, inhuman, or degrading treatment in breach of s 10(b) of the Victorian Charter. The Board found that AA suffered from sexual disinhibition, which was a symptom of his mental illness, and that it was therapeutically necessary for him to be treated with Depo Provera. Further such treatment was reasonably justified under s 7(2) of the Charter, which sets out the factors to be considered in limiting rights (Bradfield 2010). This decision was subsequently criticised as ‘giving precedence to involuntary treatment over the autonomy of the individual’ (Leoncio et al. 2010, 46).

In Re Kracke and Mental Health Review Board (2009), Justice Bell gave a lengthy decision concerning the interpretation of the Charter in relation to Gary Kracke, a 37-year-old man who was being treated as an involuntary patient under the Mental Health Act 1986 (Vic). The Mental Health Review Board should have conducted a number of reviews of Mr Kracke’s involuntary status over a period of time, but this had not been done. When the Board eventually confirmed the Involuntary Treatment Order, Mr Kracke appealed to the Victorian Civil and Administrative Tribunal arguing that the treatment order had become immediately invalid once the time for conducting the review had expired. Justice Bell rejected this submission. He stated:

The purpose of the Mental Health Act is to protect the health of mentally ill patients by giving them medical treatment which they need. A psychiatrist has certified that Mr Kracke needs the treatment he is being given. The board’s failure to conduct the reviews does not change that fact. (Bell J in Re Kracke 2009, at [833])

Justice Bell (Re Kracke 2009) was of the opinion that involuntary treatment engaged the Charter rights of liberty (s 21), privacy (s 13a), and freedom of movement (s 12), as well as the right to freedom from medical treatment without full, free, and informed consent [s 10(c)]. He also noted that international human rights treaties were ‘material considerations in the interpretation of legislation under the standard principles of interpretation’ (at [681]) and that ‘[v]ery important human rights . . . are recognised in respect of mentally ill people in the Convention on the Rights of Persons with Disabilities’ (at [681]). Nevertheless Justice Bell held that ‘the limitations on Mr Kracke’s human rights imposed by giving him involuntary treatment were demonstrably justified because the treatment was only given on grounds of medical necessity and was subject to various safeguards’ (at [847]).

Justice Bell (Re Kracke 2009), however, did find that the failure to conduct the reviews within the specified time period breached the right to a fair hearing under s 24(1) of the Charter and made a declaration to that effect. He pointed out that in terms of remedies, ‘the Charter is not a toothless tiger’ (at 801) and that ‘Mr Kracke is entitled to the tribunal’s clear expression of disapproval of the breach, and to vindication of his rights, by the remedy of a formal declaration’ (at 826).

In Antunovic v Dawson and Norfolk Terrace Community Care Unit (2010) Zeljka Antunovic, a 33-year-old woman who was under a community treatment order pursuant to the Mental Health Act 1986 (Vic) exercised the common law’s habeus corpus jurisdiction to apply for an order that she be released from a community care unit where her treating psychiatrist had placed her. Under the then s 14(3)(b) of the Mental Health Act, a community treatment order may specify where a person must live ‘if it is necessary for the treatment of the person’s mental illness’. No such condition was placed on the community treatment order, nor was there any mention of where she was to live in her treatment plan.

At the community care unit, Ms Antunovic was able to go out during the day but was obliged to return at night. She asked repeatedly to be allowed to go home to live with her mother, but this was denied. It was submitted on Ms Antunovic’s behalf that the habeus corpus jurisdiction was legitimate because it was consistent with protection of her rights under the Charter (Freckelton 2011).

Justice Bell accepted this submission and found that Ms Antunovic’s involuntary status engaged the right to freedom of movement under s 12 of the Charter and the right to liberty and security of the person under s 21. He found that there was a ‘substantial’ restraint (Bell J in Antunovic v Dawson and Norfolk Terrace Community Care Unit 2010, at [173]) on Ms Antunovic’s freedom of movement and that her personal liberty was ‘being restrained by the doctor and the unit’ (at [175]). These restraints were not lawfully authorised under the Act, and ‘[t]he unit and the doctor are asserting a power which in law they do not have’ (at [184]). Accordingly, Justice Bell ordered Ms Antunovic’s immediate release from the unit.

In Patrick’s case (2011) the facts were that ‘Patrick’ was a 58-year-old man who was living in a hospital under an involuntary treatment order. The hospital wanted to move him to supported accommodation in a hostel but he wanted to return to his own home. The hospital applied to the Victorian Civil and Administrative Tribunal for an administrator to be appointed, believing that an administrator would probably sell Patrick’s house and thereby prevent him from living there. The Tribunal did appoint an administrator, and Patrick appealed, seeking orders setting aside the appointment.

Justice Bell upheld Patrick’s appeal. He stated that

[t]he irreversible and extreme step of severing a person’s connection with their home and denying them freedom of choice about where to live is a drastic interference with their fundamental common law rights and freedoms and their basic human rights (Bell J in Patrick’s case 2011, at [286]).

His Honour went on to find that ‘[t]he interpretation which least infringes human rights must be adopted’ (at 287). He furthermore held that the Tribunal had erred in law in interpreting the relevant provisions of the Guardianship and Administration Act 1986 (Vic) and in exercising its discretion under the Act because the decision to appoint an administrator was an extreme one, which interfered with, amongst other rights, the right to equality before the law under s 8(3) of the Charter and the ‘right to move freely within Victoria and to enter and leave it and . . . the freedom to choose where to live’ under Section 12. In his judgment Justice Bell referred to the CRPD extensively, and Article 12 CRPD on legal capacity in particular, noting that ‘[t]his convention, to which Australia is a party, states general principles which may be of importance to the application of the Guardianship and Administration Act in the contemporary setting . . . ’ (at [131]).

Justice Bell found (at [47]) that Patrick was not able to move freely within Victoria or to choose where to live because he was detained in hospital pursuant to an involuntary treatment order under the Mental Health Act 1986 (Vic). While this was presumably a legitimate breach of s 12, Justice Bell found that the appointment of an administrator would be even more restrictive of Patrick’s s 12 right because the administrator would probably sell Patrick’s home.

In his conclusion, his Honour stated:

No sufficient purpose has been shown to justify such a serious infringement of [Patrick’s] human rights, as he is not in a crisis (or anything like it) in terms of his health, accommodation or otherwise. He has not been found to be mismanaging his money or his home. It is not known whether transferring him to a hostel would be successful, temporary or permanent. Lastly, appointing an unlimited administrator was virtually the most rather than the least restrictive option which was reasonably available (Bell J in Patrick’s case 2011, at [373]).

A significant feature of Patrick’s case was that under s 39(1) of the Charter, which deals with legal proceedings, the Supreme Court was able to conduct judicial supervisory review of the proportionality of the decision of the Tribunal to appoint an administrator. Thus, while the Charter generally limits the right for individuals to claim relief and damages are specifically not to be awarded under s 39(3) of the Charter, Patrick was nevertheless able to get the Tribunal’s decision set aside.

A further case concerning Charter rights and those with mental impairments is that of XX v WW and Middle South Area Mental Health Service (2014) of the Victorian Supreme Court. In that case, the Victorian Mental Health Review Board had discharged ‘XX’ from an involuntary treatment order on the basis that she could receive adequate treatment as a voluntary patient from her private psychiatrist. Just under four hours later, a recommendation was made by the psychiatrist ‘WW’ for a fresh involuntary treatment order, and this was later made. It was submitted on behalf of XX that the psychiatrist’s and mental health service’s actions were unlawful under s 38(1) of the Charter, which states that

it is unlawful for a public authority to act in a way that is incompatible with a human right or, in making a decision, to fail to give proper consideration to a relevant human right.

It was argued that an involuntary treatment order could only be made after a Board’s decision to discharge a patient if there was extra information that would put a significantly different complexion on the case.

Justice McDonald rejected this submission, finding as a matter of fact that the psychiatrist did have regard to the Board’s decision and that he believed the circumstances had changed since the Board discharged the involuntary treatment order. He found that the psychiatrist had

seriously turned his mind to the possible impact of the recommendation for an ITO [involuntary treatment order] on the plaintiff’s human rights and the implications for her, and that countervailing interests or obligations were identified. (McDonald J in XX v WW 2014, at [117])

Again, it was accepted that providing the legislative criteria for involuntary treatment were followed, an involuntary treatment order was a reasonable limitation on XX’s human rights under s 7(2) of the Charter.

The ACT Civil and Administrative Tribunal held In the Matter of ER (Mental Health and Guardianship and Management of Property, 2015) that a person who had been appointed a guardian because of ‘impaired decision-making’ could nevertheless give lawful consent to psychiatric treatment. In that case, the Public Advocate had been appointed as guardian to ‘ER’, a 55-year-old woman, who was considered to have a ‘mild to moderate intellectual disability’ (para 8) and who had also been diagnosed with bipolar disorder. Under the Guardianship and Property Act 1991 (ACT) a guardian can give consent on behalf of the person to certain medical treatment, but not to psychiatric treatment. The question of law for the Civil and Administrative Tribunal was whether ER, who was considered to lack decision-making capacity under guardianship legislation, could nevertheless consent to (or refuse) psychiatric treatment. It held that she could make her own decisions about such treatment ‘from time to time’ (para 1).

The ACT Disability, Aged, and Carer Advocacy Service (ADACAS) and the Human Rights Commission (HRC) were given leave to participate in the hearing. The Tribunal found that there was a ‘spectrum of capacity’ and quoted the ADACAS submission in this regard:

The UNCRPD states that all people are born with rights, including the right to legal capacity. The ability to act on these rights can be exercised with support. The UNCRPD casts capacity outside the have or have not paradigm, and into a spectrum by acknowledging that all people have capacity and are able to exercise it, with levels of support that are appropriate to them. The nature of some people’s impairment will mean that they may require high levels of support, others will require less. (In The Matter of ER 2015, para 34)

The Tribunal concluded that ‘[t]he common law presumes that a person has capacity to make a decision and this presumption is reinforced by the obligation under Section 30 of the Human Rights Act to interpret law in a way that is compatible with relevant human rights and the operation of those rights, including the rights to protection from torture and cruel, inhuman or degrading treatment, the right to privacy and reputation and the right to liberty and security of person as well as the UNCRPD’ (para 44). It then went on to state (In Matter of ER 2015, para 44) that ‘[c]apacity may fluctuate’ and that ‘[c]apacity must be assessed in relation to the decision to be made’.

The Tribunal did not refer to the CRPD Committee’s General Comment No 1 on Article 12, perhaps because the majority of submissions to it were made prior to the Comment being adopted. Thus, the Tribunal retained the traditional conflation of mental capacity with legal capacity. The rest of the decision focused on the assessment of ER’s mental capacity, rather than on any obligation on mental health practitioners to provide treatment options and the risks associated with them. What is important, however, is the Tribunal’s agreement with the ADACAS that it was ‘appropriate to give ER as much support as necessary to enable her to retain the right to make decisions about her own life’ (In Matter of ER 2015, para 41).

Most recently, in ZEH (Guardianship) (2015), the Victorian Civil and Administrative Tribunal had to consider whether to give permission for a ‘special procedure’ (sterilisation) of a young woman under the Guardianship and Administration Act 1986 (Vic). ZEH had an intellectual disability rather than a mental impairment, and the Court found that she did not have the capacity to consent to this medical intervention. However, Deputy President Nihill did discuss the procedure with her to establish her views, and ZEH was given support to give her a better understanding of human reproduction. In her judgment, Deputy President Nihill referred to both the Charter of Human Rights and Responsibilities and the CRPD. She noted that the Guardianship and Administration Act 1986 (Vic) can ‘give rise to a culture of paternalism’ while the Charter promotes a ‘culture of justification’, and that the ‘difference between the two may be understood in terms of the ‘“paradigm shift” in approach towards people with disabilities’ reflected by the CRPD at [51]. She found the Guardianship and Administration Act 1986 (Vic) must be administered in a manner compatible with human rights, and the enactment of the Charter meant that ‘stronger regard must be had to the human rights implications of guardianship and administration order than was previously the case’ at [51], and that the public body that was called upon to authorise medical treatment for people who were not able to give voluntary and fully informed consent must ask ‘can the decision [to provide treatment] . . . be justified in terms of the Charter?’ (para 54). Deputy President Nihill took both the Charter and the CRPD into account and stressed the human dignity that had to be accorded to ZEH. She referred to ZEH’s right to be treated equally before the law and her right to be protected from treatment without her consent (at para 57) and found that the proposed procedure was not justified. This case demonstrates the Tribunal’s willingness to take human rights considerations, including the CRPD, into account in cases involved (potential) involuntary medical interventions, and the role that such considerations can play. Ultimately it led the Tribunal to deny permission for an intervention that it did not regard ZEH was capable of consenting to, but not to explore the issue of supported decision-making.

Overall then, the Human Rights Act 2004 and the Victorian Charter have not altered the substituted decision-making regimes involved in the involuntary treatment of those with mental impairments. This is also true of the CRPD, although it has occasionally been referred to by Australian courts. Justice Bell’s decisions have gone some way towards curtailing attempts to further restrict the rights of those subject to involuntary treatment orders, but the regimes themselves have been viewed as reasonable limitations on the human rights of those with mental impairments. The cases of ER and ZEH also indicate that it may be at the Tribunal level that human rights frameworks will be the most influential in determining the scope of involuntary treatment.

Conclusion

This article has explored how human rights frameworks apply to persons with mental impairments with a particular focus on informed consent for treatment. The case law indicates that while there has been some attention paid to human rights breaches, informed consent in itself has not been viewed as a pre-requisite for the treatment of persons with mental impairments.

Despite the existence of a Charter of Rights and Responsibilities in Victoria and the Human Rights Act 2004 in the Australian Capital Territory, the involuntary treatment of those with mental impairments continues to be viewed as a justifiable breach of human rights on the basis of medical and social necessity. Informed consent as set out in Rogers v Whitaker (1992) has not been viewed as a pre-requisite for involuntary treatment because mental health legislation has traditionally enabled substituted rather than supported decision-making.

There are at least checks and balances on the process surrounding involuntary treatment, and some limitations have been placed on making decisions about living arrangements for of persons with mental impairments. Nevertheless, perhaps because of the lack of a federal bill of rights and also because of a continuing focus on mental rather than legal capacity, it would seem that it will be some time before mental health practitioners will be obliged to provide information about the material risks of treatment to persons with mental impairments under mental health laws.

In brief, only ‘weak’ protection has been afforded to persons with mental impairments in relation to informed consent to medical treatment.

In contrast stands the CRPD, which, according to the UN CRPD Committee in its General Comment No 1 on Article 12, requires that medical treatment can only be given following the informed consent by persons with disabilities, including persons with mental impairments. However, the approach to date indicates that it may prove difficult for the purist interpretation of the CRPD to have much traction, and existing case law presents barriers to the full acceptance of the rights set out in the CRPD by courts in relation to those with mental impairments. Whilst the CRPD may promise a ‘new era’, it may prove difficult to influence jurisprudence that is steeped in ‘reading down’ the rights of persons with mental impairments.

Disclosure statement

No potential conflict of interest was reported by the authors.

Additional information

Notes on contributors

Bernadette McSherry

Bernadette McSherry is the Foundation Director, Melbourne Social Equity Institute and Adjunct Professor of Law, Melbourne Law School at the University of Melbourne and Faculty of Law, Monash University, Australia.

Lisa Waddington

Lisa Waddington is the European Disability Forum Chair in European Disability Law, Faculty of Law, Maastricht University, Maastricht, Netherlands and Visiting Professor, Melbourne Law School at the University of Melbourne, Australia.

Notes

1. The term ‘persons with mental impairments’ is used throughout this article as this is the term agreed upon and used in Article 1 of the Convention on the Rights of Persons with Disabilities. The World Network of Users and Survivors of Psychiatry (2008) agreed to the use of this term, while noting that it prefers to use the term ‘psychosocial disability’ (http://wecando.wordpress.com/2008/03/19/resource-implementing-the-disability-rights-treaty-for-users-survivors-of-psychiatry/). The CRPD Committee also uses the term ‘psychosocial disability’. While the term ‘mental impairments’ is not defined in the CRPD, Article 1 refers to persons with disabilities as including those who have ‘long-term physical, mental, intellectual or sensory impairments’, thereby indicating that mental impairments are distinct from intellectual impairments.

2. This section draws with permission of the publishers [Brill] on Part 2 of (Waddington, L., and B. McSherry, 2016). ‘Exceptions and Exclusions: The Right to Informed Consent for Medical Treatment of People with Psychosocial Disabilities in Europe’, European Journal of Health Law 23, no. 2, 279–304.

3. At the time of writing, there are six individual communications (or complaints) pending before the CRPD Committee concerning Australia that include references to Article 12 of the CRPD. They do not, however, appear to deal with consent to treatment: Communications 7/2012, 11/2013, 13/2013, 17/2013, 18/2013, and 19/ 2013. There are 10 pending communications against Australia before the Committee in total. No other State has so many pending communications. Information available via: http://www.ohchr.org/EN/HRBodies/CRPD/Pages/Tablependingcases.aspx (accessed 1 February 2016).

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