Abstract

Purpose: The rehabilitation stage of a stroke survivor’s recovery provides an opportunity to prepare family caregivers for the supportive role they will play in the community. The goal of this qualitative study was to learn about family caregivers’ experiences and support needs during the rehabilitation phase to inform program development. Method: We recruited family caregivers within the first 6 months post stroke. Nine caregivers participated in 40- to 60-minute in-depth qualitative interviews where the personal needs of caregivers were illuminated. Data were analyzed using content analysis. Results: An overriding theme was differences in personal needs between older and younger caregivers. We interviewed five younger caregivers (≤55 years of age) and four older caregivers (>55 years of age). Younger caregivers identified informational support and training as important parts of their social support whereas older caregivers did not. Younger caregivers were also more likely to complain or criticize the health care system and staff than older caregivers. A common theme among older caregivers was to focus on the importance of keeping a positive outlook throughout the experience. Conclusion: Caregiver experiences and support needs varied according to age. This suggests that support programs should consider age as a factor when tailoring interventions.